Saturday, July 3, 2010

July is here....WHAT?

Wow, I cannot believe how fast this year is going by!  We're more than half way through it.  Our parents were right; time does fly the older you get.  Remember being a kid and thinking it took FOREVER for Christmas to roll around each year?  Now you think, "It's Christmas already??"  The thought of the days flying by make me wish I had a more adventurous life.  Shouldn't I be scuba diving, studying for a pilot's license, and skiing in Switzerland?  When you live with a chronic illness you really think you should be living each day to the absolute fullest--or maybe I do.  But then...I realize I have a good life even if I'm not traveling to the most exotic places or experiencing the Aurora Borealis.  Just an outdoor concert with an awesome band, a glass of wine, and the hubby laughing as I sing out (badly) to the songs is LIVING.  There's a Feist song with some insightful lyrics, "And we'll collect all the moments one by one, I guess that's how the future's done".  I agree.  When I look back on my life thus far I am satisfied.  Definitely quality over quantity.  So, time will continue to fly and I will continue to think, "Where did that day, week, month go".  I'll probably never get a pilot's license, but that's okay.  I can relish in the fact that I thought about it and even went as far as to research it online.  Now, I'm off to sit on the porch on this remarkably mild afternoon and read a magazine.  That's my life and it's fabulous!

Friday, May 7, 2010

96 years young...


Last Thursday I hopped a plane to Denver to see my gramma-in-law, Marie.  She was turning the big 9-6 that following Sunday.  I met with my mom-in-law, Patty, and sis-in-law, Wendy at the Denver airport.  We girls had a great time over those 4 days.  We got to see Gramma's sisters, all 3 of them.  Each one over 85!  They're an amazing bunch.  They get together and talk about the old times on their farm and they LAUGH, LAUGH, and LAUGH!  It's so contagious!  Gramma is the oldest so she, of course, has the most memories.  Gramma was born in 1914 and just to be around her and hear her speak of all of things that have gone on in this world since then is just amazing.  I feel like a newborn compared to all of the wisdom she has.  I am so fortunate to have her in my life.  All four of my grandparents and step-grandfather have passed away so I feel especially close to her; I call her 'Gramma' and have told her that she's become my surrogate grandparent.  Heck, this lady even flew in for a surprise birthday party for me when she was 90!  As you can tell I have great admiration and respect for her.  I think she enjoyed having us around, Patty, Wendy, and I tried to pamper her as much as we could in the 4 days we were there.  We took her shopping.  Wendy and I acted as her personal shoppers as we grabbed outfits and brought them to her for her opinion.  In the end, we bought 2 nice outfits and a lovely blazer that looked beautiful on her.  On her actual birthday we took her to one of her favorite restaurants, The White Fence Farm.  This was the second time I had been to this restaurant and it never disappoints!  The food is served 'family style' and you get your fill of bean salad, cottage cheese, cole slaw, yummy corn fritter sprinkled with powdered sugar, and beets.  Next, they bring out the delicious fried chicken--YUM!  The waitresses sang 'Happy Birthday' to Gramma and she and I split a piece of lemon meringue pie and Patty and Wendy split some chocolate toffee pie.  We all left for our separate destinations the next day.  It was hard leaving Gramma, but we promised to be back.  Later that day, I called her to tell her I'd arrived home and she said she was so grateful for us.  That day after we left she was able to sit down and relax and not worry about a thing.  We had left plenty of food in the fridge and cleaned her house.  This blog post is just a tribute to a great woman, a great matriarch, an admirable human being.  I hope for many, many more birthdays for Gramma Marie!

Sunday, April 18, 2010

I remember when...

This weekend started with a wonderful walk to benefit the Cystic Fibrosis Foundation.  Casey and I participated and the weather was perfect.  It was not too hot, like last year, and it was breezy.  We cruised along and I couldn't help but notice all of the kids this year.  I can always tell the CF kids from the healthy kids because CF kids (as well as adults are always super skinny).  I found myself looking at every kid as we passed by.  They were acting like kids, running along the wall surrounding Duke's east campus.  Girls teasing the boys, and vice versa.  I saw so many petite little blond girls walking this year.  Every time I passed one I thought, "I remember when that was me."  The nasal sounding voice, the skinny legs, the blond hair--all me about 25 years ago.  Every time I passed one I took a second and thought, "God please let these girls AND little boys grow up like I was able to".  If there isn't a cure soon the reality is some of these kids won't.  It's hard to think back to a time when I was this tiny, but it wasn't long ago.  So, please say a little prayer that these kids grow up tall, strong, and healthy.  I know these are the things I wished for as a short blond kid with skinny legs and  a terrible cough.  God willing we will beat this disease.  Let it be any day now.

Thursday, April 15, 2010

Two dorks=True Love

10 years ago today...

I was getting married.  Wow!  I can't believe it's been 10 years, yet I can't believe it's only been 10 years.  We've gone through so much in 10 years.  Let's see, Dana gets incredibly sick on the honeymoon, Dana goes into ICU for 2 months, Dana recovers enough to be listed for a lung transplant, Dana, Casey, and Dana's mom move to NC, Dana gets her transplant, Dana gets incredibly sick, Dana stays in ICU for 2 months, Dana recovers and goes home.  Okay, kids, that all happened in the first year of our marriage!  I figure if my man can deal with that he can deal with ANYTHING!  Life's been nicer to us in the years following that one.  I've done relatively well and Casey has been inching his way up the career ladder at Duke.  We've been fortunate enough to have lived in two neat houses.  We're almost done with the newest one.  Casey blew me away with his handyman skills.  There's not a room in here that hasn't been touched by him.  Plumbing, electrical, flooring....the list goes on.  Oh, and he can hang a picture like nobody's business. :)  I'm a lucky girl.  Not because of all of the handyman skills and the houses or any of that really.  Just because, Casey is a good guy with a good heart and he makes me laugh every day.  Even when I'm mad at him I can't stay that way long.  I don't believe in actual 'soulmates' but I'm glad the universe introduced us.  We fit.  I'm wishing for at least 10 more years with this guy.

Sunday, April 11, 2010

inevitable

So far in this new decade there have been too many losses. I know that death is inevitable; believe me I KNOW. It comes at you fast or it can come at you slowly. Either way it comes. It takes the people and the creatures that we love. Today it came and took my beautiful sister-in-law's mother. She fought her fight, the nasty fight with breast cancer, and unfortunately she lost. I feel her pain for losing a mother too soon. I feel the pain for every child or adult who's lost a mother too soon. Our mothers are the vessels for which we landed on this planet. They were once our life force. The inevitable has come too soon for this woman, a woman who tonight is simply a motherless child. That is the title she's taken for this moment. I am feeling so grateful right now to know that my mother is safe, healthy, and secure. I pray that as 2010 goes on it is kinder to everyone I love. I also pray that hope lifts those for whom it will not be kind to.

Thursday, April 8, 2010

You're in a good, good place

Those were the words my doctor said to me today. Today was my follow up appointment from when I had my bronch, which was very complicated. Remember, with bleeding (lots), a finding of staph, and the high fever. Well, I recovered--thank goodness. Dr. P was very happy that my pulmonary function tests were back up and back to normal. He looked at me, smiled and said, "You're in a good, good place considering you're nearly 10 years out". I feel so very fortunate right now. Taking care of my body has been my full-time job for sooooo long and it's nice to know that it's paying me for all of my hard work. Now, if I could just get the pesky sinuses to fall into line. Of course, I couldn't do any of this without those special lungs--the ones that were put into my body and have decided (for the moment) that they really like being in there. I promise, dear lungs taken from another, to always treat you well. Physically you reside by my heart and spiritually you reside in my heart. That's all, just blissful for life and the life that is regifted everyday.

Friday, April 2, 2010

Frankie says relax

Isn't that a great song? That's exactly what I'm doing today--relaxing. There's nothing pressing to do at this moment and I must admit I'm still in bed at 11:30am with my kitty, Mia, beside me. The windows are open and the fresh air and sunlight are rushing in. It's a really beautiful day in my neighborhood, Mr. Rogers. :) I love, love, love days like this. The next two weeks are going to be busy, busy so I'm chilling while I can. All through my life I have found I have two speeds, frantically rushing around and too lazy to move. Considering I'm still in my pjs and lying in the bed, I'd say it's a too lazy to move day. :) No apologies, though.

Ahh, the weekend is finally here. This was a long week--wasn't it? I look forward to spending time with the hubs and having Easter dinner with friends---they are the best cooks! I had to, of course, go out yesterday to buy an Easter outfit. A long white eyelet skirt, pastel patterned cap-sleeved shirt, and gladiator sandals. Very Spring and all from Old Navy and under $80. Also, on the agenda is yet another trip to IKEA. I think I know this place backwards and forwards now. We have to return some things and look into a gas cooktop. Oh, by the way, my husband is considering hooking the gas to the cooktop himself! Help! He's very determined AND stubborn. He really can do anything it sets his mind, too, but messing with explosive gas! I need to get my affairs in order--HA!

Well, I've got to get back to my lounging. :) I feel a nap coming on--yawn! Zzzzzzzzzzzz.... Everyone enjoy the holiday and stay well.

Sunday, March 28, 2010

Great weekend

The parents come up to see the new house. Wow, my mom cried because she was so very happy for us. Awwww. It made me cry. It's funny how much you want to impress your parents--even when you're older and in your 30s. She and my dad were extremely impressed. I'm happy for my house, the hubby who gave me this house all spiffed up and beautiful, and the friends and family who've been able to seen our new pad. And the compliments they've given. I'm happy.

Sunday, February 28, 2010

What a month!

I haven't posted in quite a long time I see. February was an interesting month. The beginning started off great with the big move to the new place. We were sleeping on an air mattress on the floor but we didn't care; we were finally home. Casey's (the hubby) mom can up from South Carolina to help us with the many, many tasks involved with whipping this house into shape. She's a master at all things related to the house. Painting and decorating are her specialities. She's also a huge help when it comes to organizing and cleaning. She works so hard and she has been an amazing help to us. I am very fortunate to have such an understanding and reliable mother-in-law. Not to mention she spoils us terribly with new things for the house. You should see our bedroom, I feel like I could spend most of my day in there. Well, I have been lately.

Patty (the mom-in-law) has been with us now for 3 weeks. In that time we've gotten a lot accomplished. Let's see, all except two little rooms (laundry and 1/2 bath) have been painted, a chair recovered, furniture moved, boxes unpacked, bathrooms scrubbed, lighting wired, etc, etc, etc. I must admit I'm getting kinda overloaded with "house". I was very into getting everything in ship shape, as I am a true perfectionist and like everything to be just so. I feel chaotic when things are everywhere and projects are unfinished. Life is funny, though, just as I start to feel the pressure of all of the things yet to be done--and believe me with my Type A mindframe I was feeling the pressure--I got sick.

So, I wasn't sick sick. I had gone in for my bronchoscopy--the procedure I must endure to see if my transplanted lungs are rejecting--and it was not routine. First of all, I hadn't had one (thankfully) in nearly 8 years. I have a terrible issue with bleeding. It's something my doctor and I both knew going in but decided to proceed anyway, just to be sure things were okay. Well, everything started out fine. Sedation, check, throat numbing spray, check, pediatric scope to go down that little throat, check. I wasn't fully sedated so I could hear the doc. The bleeding had started. Ugh! Skip to an hour later. Doc says "No more bronchs for you unless there's an extreme problem." I agree. So, all is fine immediately afterwards. Later that night, though, I had a really high fever and I don't get high fevers. Turns out the procedure caused an infection--ugh--and for the next 2 days I felt absolutely awful. I took a week off from working and rested.

Well that rest and the resting I continue to do was a sign. It made me realize that I don't really have to sweat the small stuff. While a house and all of the duties that go along with owning a house are important, they are certainly small potatoes in comparison to my health. I have to remember Rome wasn't built in a day. This house won't be 'finished' in a week, or a month, or probably 6 months. So what! As long as I'm here to see it transform that's all that matters. I know I can't change my Type A mentality but I also know that life is fleeting and I need to just 'be' for now. Ahh, as I sit here on the bed with my little kitty, Mia (who has mastered the art of justing "being") I feel relaxed. I know there are a thousand things I 'need' to do, but there always is. That won't change.

I am happy in my lovely home, after all I have a home. I am happy that I am on the mend from being sick. I am happy to have such a wonderful husband and mother-in-law who have forged on as I sit back and watch it all. I am happy right in this moment. We'll see what tomorrow brings when the 1st day of March arrives. Thanks, February 2010, for bringing me a life lesson.

Monday, February 8, 2010

New house, new sinus infection

Oh my God, it never fails when I need to do a thousand things my sinuses say, "I don't think so!". I had a great day on Saturday, I packed up our entire apartment by myself (Casey was responsibly for loading it all and unpacking it all). My sinuses were acting up a little but that's status quo these days. We got unpacked and settled in by about 8pm on Saturday night. Well, by then we were ready to go to bed! All of our furniture is packed in Pods so no real bed. We had to blow up the trusty ol' air mattress and, boy, was that an enjoyable sleep--NOT! Imagine--2 adults plus 2 cats on a twin size inflatable mattress that seems to slowly leak air. Plus, for some reason we only put a sheet and thin blanket on. Casey and I both woke up shivering but we were both too lazy to get up and get something warmer. So Sunday rolls around and the list of things to do is soooo long. Plus, my sinus situation has taken a turn for the worse. I'm blowing, sneezing, and the drainage in my throat is unbearable. Casey is busy as can be installing our dishwasher all day---he is such a perfectionist that he took it out 3 times (!) just to make sure it was absolutely perfect and flush with the counters. I thought I had OCD!!! I was not a ton of help because I was feeling so crappy! I ended up falling asleep around 7:30 only to wake up around 11pm wide awake. Don't you hate when that happens? This morning I felt like my head was going to explode. I irrigated my sinuses (like I do every day, 3 times a day now) and all I could think was, "Gotta call Tracie". Tracie is my lung transplant coordinator at Duke. I called, she called in Levaquin. Here's hoping it knocks this infection out. It usually does. Knocking on wood!!! I can't be sick right now. There's a big Ikea trip planned for Wednesday. We're getting every last thing we need to finish up this house! Yay! So I've got to feel better. :(

Life is the new house is neat. It's been 4 long months since we've been in an actual house. This area is so quiet. Our house backs up to Duke Forest and at night (we don't have blinds on the windows yet) it's really neat to look out and see so many stars. Our neighbors are extremely nice, too. In our old neighborhood no one was that personable, and we lived there for 6 years! Our new neighborhood is a cul-de-sac and we literally have 4 neighbors in it. It's funny I just noticed there are two different mailmen that come by. ??? Is one for even numbers and one for odd numbers? Interesting. I'm currently waiting for UPS to deliver our fancy German cooktop that Casey insisted on having. Our kitchen is completely European. Well, maybe except the appliances. I'm also waiting for the delivery of a Pod (storage trailer). I've been waiting all day! I haven't even taken a shower in fear that I will miss one of them. Was that TMI? :) They were both supposed to be here before noon. Well, it's 2:10 right now. WTF? I'll keep waiting. I'm so incredibly bored, though. The cable is not hooked up so all I can do is surf the web, oh and buy stuff for the house (I'll tell Casey about it later). :)

Well, better go the laundry is beeping. That is the one thing that is keeping me busy--housework. Fun! So glad the sun is out and that I have a Levaquin script waiting for me at Kroger.

Thursday, February 4, 2010

Could it be???

Well, it looks as though we may be able to move into our new house this weekend! Yay! Everything major should be done by Friday afternoon. I know now that I've said this AND written it there will be some snag, but I'm remaining optimistic. Life in the new house will not be too glamourous at first. Only one bathroom with a sink and shower to use. No cooktop and no oven. Casey will have to work overtime this weekend to get the dishwasher hooked up and ready! Oh, and the washer and dryer. Luckily the fridge is installed and ready to go. Thinking of all of the details that still have to be addressed make my head spin, but it's nothing to fret over. Just life and a fortunate one at that.

I've been feeling pretty good this week. I've only worked a couple of days so far this week. My pals, Laura Mish and Florence were out of school since today. Well, Florence doesn't go to school she has tutors. We all hope that she gets there (with an assistant) next school year. This girl is so determined to learn and be like all the other kids her age. She's remarkable! I love that kid!

Anyway, this week has been a breeze. The snowy roads kept me in. I worked on (along with Aaron) getting the Lung Transplant Foundation on Facebook and Twitter. Wow, the response we've had! It's so incredible. It's hard to communicate to people how prevalent chronic rejection of transplanted lungs is AND how there's really NO way to prevent it OR stop it once it's started. People always say, "but there's so much medical technology". We need specific research targeted for chronic rejection of the lungs. The Lung Transplant Foundation's main agenda is to do that. Sorry, I go on and on but this is such an important cause for me and the hundreds of people I know facing the same future.

I'm excited about the Superbowl this weekend. This should be a great game. Go Colts! I am a huge Peyton Manning fan. I also loved their old coach, Tony Dungey. So I'm rooting for Indianapolis but I must admit it would be a great victory for the Saints. Casey and I will be hanging out with pals Aaron and Kellie. They always make the best food and on Sunday they're making chili and cornbread. Yum!

There's more snow predicted for Saturday. Ugh, I love an occasional snow but I am hoping it passes by. I'm ready for the sun to stick around. Until the next blog..

Sunday, January 31, 2010

Snow, snow, NOOOO!

Normally I love the snow. We don't get that much in North Carolina so any that we see during a winter is nice. However, this snow couldn't have come at a worse time. All of our house renovations have been pushed back by a few days. The flooring guy was supposed to work through the weekend--that didn't happen. The countertop guys were suppose to start on Monday--that won't happen. So, it's just another delay for us getting into our house. Ugh! Casey was determined to get to our house yesterday so he decided to walk. In the 4 inches of snow! The apartment where we're staying is about a mile and a half from our new house. He made it okay. He packed a backpack of 'rations' and set off. I felt a little like Ma from Little House on the Prairie as he left. :) He was able to drive over this morning and that's where he is now and will be for some hours to come. I must say he is a very determined man and I'm very fortunate that he is so handy and patient with all of this house craziness. I feel a little guilty about not going with him but I really needed a rest.

Last week was hectic. I worked a lot. I'm a part-time nanny for a 4 year old and sometimes her 6 year old sister. Florence, has a few health challenges just like me. She has yet to be officially diagnosed, despite trips to several medical centers--even one in Montreal, Canada! All the doctors know for sure is that she has some type of auto-immune disease. When I first met her she was not talking or walking or interacting much at all. In December she started a procedure called plasmapheresis, this procedure helps to cleanse and recirculate her blood. The procedure has worked wonders! She is now able to walk, talk (although not as well as an average 4 year old), and play. It is so nice to see her improving. This little girl is a trooper! She never asks for help and doesn't want any special attention. I think this is true for every kid (or adult) suffering from a chronic disease. We don't want to be singled out!

Over the weekend I started feeling a little worn out. I always feel worn out when too much is going on. Work, the house, working on the website for the LTF, and just everyday stuff have taken a little toll on me. It's nothing new. When I start to feel this way I always have to 'drop out' for a day or two. I'm very fortunate that I can do this. I don't have any kids and my husband is incredibly understanding. Usually 'dropping out' means that I don't plan anything. I rest, rest, and rest some more. This weekend was the perfect opportunity to do this. Yesterday, I spent most of the day in my pjs while looking online for decorating ideas. Very low stress. Today, I took a looonnngg nap with my kitty, exercised a little--aerobic, of course, watched some HGTV, and now I'm blogging. Just this two days of chilling out have restored me. On Friday I had a seriously stuffy nose, low-grade fever, and some aches. Today, while I still have some nose issues, my fever is gone as are my aches.

My bronchoscopy was rescheduled from tomorrow, Feb 1 to Monday, Feb 22. While I was ready to get it over with, it seems to have worked out since I know we will have icy roads tomorrow. I really didn't want to have to go out that early anyway. 7:30am--yikes! I am a little relieved, too, because Dr. P doesn't seem in an urgent rush which I take to mean he's not super worried about a case of rejection. My PFTs have increased a little now that I'm getting back into regular exercise. I'm going to keep it up for sure!!!

I'm feeling ready for the week ahead. I think. Hopefully we'll be moving in to the new house this coming weekend. Crossing my fingers!

Tuesday, January 26, 2010

It's a Tuesday, not Wednesday

I woke up this morning and could have sworn it was Wednesday. No, just Tuesday. There's a lot going on this week and I guess I'm trying to hurry it along. For starters we hope to be moving into our new house by Sunday. The floors are being put in as I write and after that there's only countertops to place in the kitchen and bathroom. Whew, we've been in our apartment for 3 1/2 months now. I must admit, though, apartment living is not at all that bad. I did, however, wake up at 5:30am today to hear a college girl balling her eyes out as it sounded like she and her boyfriend were breaking up. Yes, it was 5:30am, and yes I was nosy and listened until about 5:45am. Oh drama!

I've started exercising again--I needed that kick in the pants by everyone! It felt good and I feel very alert now. Mornings are always so hard for me, I've never been a 'morning person' but I think working out in the morning will help energize me (along with that strong cup of coffee I always have). Tracie, my lung transplant coordinator, called yesterday and gave me my lab results from last Thursday appointment. All was well in that department. She scheduled my bronchoscopy for Feb. 1st, so we'll see what that shows. If there is a problem or something shows up in the biopsy than I'll have an appointment that following Thursday.

Well not much more to say today. I'm getting ready to go hang out with my little buddy, Florence. She is the little girl I keep for a great family in Durham. She's quite an inspiration. I'll have to blog a little about her on another day.

Friday, January 22, 2010

First time blogging...here I go

Well, I have never blogged before and I don't know if I'll even have any followers but it's something I wanted to try. This blog will be a sort of outlet for me as I am a 33 year old CF survivor and 9 year post transplant patient and as those numbers increase I am becoming more and more thankful for my life. On the other hand, as those numbers increase I become more and more worried about my future. Being that I've already had a lung transplant, last November was 9 years, I have to worry more and more about the day when my body starts to reject the lungs that saved my life. It's a harsh reality, but one that I must be ready for. It's so hard to think beyond today when I'm healthy and happy. There are always reminders in my everyday life. Some reminders are much more in your face; like a memorial service for a dear friend. Blogging for me is a way to get it all out there. I want to write down everything that's going on health-wise, home-wise (it's just me, the hubs, Casey, and our two cats, Lex and Mia), basically just everything. I haven't kept a journal in years and I'm excited about sharing even if it's only with myself.

Things have been crazy these past few months. We sold our first house in October and bought a new house in December. We ended up moving into a tiny furnished apartment (we're still here) while the new house is being remodeled. Apartment living hasn't been bad but Casey and I are going a little stir crazy. The cats are terrorizing each other and making our lives a little more difficult with their bad behavior. All of our stuff is in storage--it has been since October. Our house is almost finished (so says the contractor) and we hope to be in by the first week of February. It's been pretty tight in the Schmidt household this month as we had to make a rent payment and a mortgage payment. This cannot go on again in February! Casey's really done a lot on his own with the house. He's really amazing me with his DIY skills. His made a few mistakes but for the most part he's accomplishing all that he set out to do. I must admit that when we first saw this house (it was a foreclosure) I was adamant that it was NOT for me. Eventually, I came around and saw the potential. It's transitioning nicely, but it will need more work throughout the coming months. That's not a big deal, I'm just incredibly thankful that I have a house to come home to.

All of the house stuff has been a little stressful for me. I'm a typical Type A personality so it's hard for me to adjust to change. I, of course, want to know ahead of time what the change is going to be so I can plan for it. Life doesn't work that way, Dana. : ) It has taken a little toll on my health, too. I've been very lax in my exercising---so, so bad for a lung transplant recipient, and my PFTs (pulmonary function tests) have taken a small drop. I had an appointment yesterday and I when I was blowing I just knew they weren't as good as they could be. I got a wee bit scared but my doc doesn't seem concerned because my PFTs rise and fall all the time. He showed me my history from way back in the day and it's true they're not very consistent. He is going to do a bronch in the next few weeks just to be sure. He wants to ease my mind and his. In the meantime I have to get in gear and hit the treadmill and start weightlifting again! No more excuses about the house, or work, or anything! Sandy is a fabulous transplant coordinator and she gave me the biggest lecture yesterday, she said, "What is all of the other stuff worth if you're not here to enjoy it?". She is so right.

In other news, the Lung Transplant Foundation for which I am heavily involved with as secretary and website committee chair has finally launched it's website! I, along with the other website team members, Jana, Amber, Aaron, Kathryn, and Kim have been working so hard to make this website a reality. My doctor, Scott Palmer, MD, and Jeff Goldstein founded this organization to help promote awareness and raise funds for lung transplant related research. Lung transplantation is a like the "red-headed stepchild" of research Dr. Palmer says. There is just not a lot of money going towards finding ways to help stop chronic rejection of transplanted lungs. The five year survival rate is very low compared to other solid organ transplants. That needs to be addressed, come on it's 2010! We need more research! If you can please check out, www.lungtransplantfoundation.org and spread the word.

Lastly, I want to say above everything else I am a CF survivor. Dealing with Cystic Fibrosis is a full-time job and the pay is lousy. :) I have met so many people who are in the same boat as I am and they are all the strongest and most amazing people I will ever know. They give me courage and I'm thankful for the support we can all share with one another. Sometimes you feel all alone in this world of chronic illness but then you remember you are definitely NOT alone!

Look for a post soon on the Durham Great Strides walk set for April 17, 2010!

Good night all!