I'm in my 30s. I have Cystic Fibrosis. No, that's not an oxymoron; I made it to my 30s WITH Cystic Fibrosis. Of course, the lung transplant at 23 helped a lot. Breathing is a gift I receive every day, every hour, every minute, every second thanks to a brave family and a generous young man who donated his healthy pink lungs to me. So take a second and recognize the breath you're taking. I'm crossing my fingers and hoping I always have that.
Sunday, April 18, 2010
I remember when...
This weekend started with a wonderful walk to benefit the Cystic Fibrosis Foundation. Casey and I participated and the weather was perfect. It was not too hot, like last year, and it was breezy. We cruised along and I couldn't help but notice all of the kids this year. I can always tell the CF kids from the healthy kids because CF kids (as well as adults are always super skinny). I found myself looking at every kid as we passed by. They were acting like kids, running along the wall surrounding Duke's east campus. Girls teasing the boys, and vice versa. I saw so many petite little blond girls walking this year. Every time I passed one I thought, "I remember when that was me." The nasal sounding voice, the skinny legs, the blond hair--all me about 25 years ago. Every time I passed one I took a second and thought, "God please let these girls AND little boys grow up like I was able to". If there isn't a cure soon the reality is some of these kids won't. It's hard to think back to a time when I was this tiny, but it wasn't long ago. So, please say a little prayer that these kids grow up tall, strong, and healthy. I know these are the things I wished for as a short blond kid with skinny legs and a terrible cough. God willing we will beat this disease. Let it be any day now.
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